The Prevalence of PTSD Among an Online Sample of US Familial Dementia Caregivers
DOI:
https://doi.org/10.21467/ajss.11.1.43-51Abstract
The increased prevalence of dementia has increased the number of caregivers. Familial caregivers can suffer emotionally as a result of caregiving. Despite caregiver organizations campaigning for awareness of caregiver trauma, more research examining PTSD among US familial dementia caregivers is needed. The present study surveyed an online sample of US familial dementia caregivers to gather a prevalence rate of PTSD. We hypothesized that these caregivers experience an equal or greater prevalence of PTSD compared to the general US population, nurses, emergency medical responders, and veterans. An online survey containing the PTSD-Civilian Checklist (PCL-C) was administered to familial dementia caregivers across the US. Data (n = 23) revealed that 26.1% of participants surveyed screened positive for PTSD criteria. Consistent with our hypothesis, this percentage is greater than the prevalence rates for the general US population and is similar to the prevalence rates for emergency first responders, nurses, and even US military veterans. These findings can greatly benefit US dementia caregivers by spreading awareness and helping allocate resources to assist those struggling with PTSD.
Keywords:
PTSD, dementia, caregivingDownloads
References
Altieri, M., & Santangelo, G. (2021). The psychological impact of COVID-19 pandemic and lockdown on caregivers of people with dementia. The American Journal of Geriatric Psychiatry, 29(1), 27–34. https://doi.org/10.1016/j.jagp.2020.10.009
Alzheimer’s Association. (2022). 2022 Alzheimer’s disease facts and figures [Special Report]. https://www.alz.org/media/documents/alzheimers-facts-and-figures.pdf
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). https://doi.org/10.1176/appi.books.9780890425596
Barrera-Caballero, S., Romero-Moreno, R., del Sequeros Pedroso-Chaparro, M., Olmos, R., Vara-García, C., Gallego-Alberto, L., Cabrera, I., Márquez-González, M., Olazarán, J., & Losada-Baltar, A. (2021). Stress, cognitive fusion and comorbid depressive and anxiety symptomatology in dementia caregivers. Psychology and Aging, 36(5), 667–676. https://doi.org/10.1037/pag0000624
Concierge Care Advisors. (2019). Caregivers suffering from PTSD (Post Traumatic Stress Disorder). Concierge Care Advisors. https://www.conciergecareadvisors.com/caregivers-suffering-from-ptsd/
Copeland, L. A., Finley, E. P., Rubin, M. L., Perkins, D. F., & Vogt, D. S. (2022). Emergence of probable PTSD among U.S. veterans over the military-to-civilian transition. Psychological Trauma: Theory, Research, Practice, and Policy. https://doi.org/10.1037/tra0001329
Deneau, M. (2018). Alzheimer’s Caregiver Burnout: How to cope with ‘PTSD’ and get the help you need. Women’ Alzheimer’s Movement at the Cleveland Clinic. https://thewomensalzheimersmovement.org/alzheimers-caregiver-burnout/
Fauth, E. B., Novak, J. R., & Levin, M. E. (2022). Outcomes from a pilot online Acceptance and Commitment Therapy program for dementia family caregivers. Aging & Mental Health, 26(8), 1620–1629. https://doi.org/10.1080/13607863.2021.1942432
Han, A. (2022). Effects of mindfulness-based interventions on depressive symptoms, anxiety, stress, and quality of life in family caregivers of persons living with dementia: A systematic review and meta-analysis. Research on Aging, 44(7–8), 494–509. https://doi.org/10.1177/01640275211043486
Hennein, R., Mew, E. J., & Lowe, S. R. (2021). Socio-ecological predictors of mental health outcomes among healthcare workers during the COVID-19 pandemic in the United States. PLOS ONE, 16(2), e0246602. https://doi.org/10.1371/journal.pone.0246602
Hwang, Y., Connell, L. M., Rajpara, A. R., & Hodgson, N. A. (2021). Impact of COVID-19 on dementia caregivers and factors associated with their anxiety symptoms. American Journal of Alzheimer’s Disease & Other Dementias, 36, 153331752110087. https://doi.org/10.1177/15333175211008768
Koop, P. M., & Strang, V. R. (2003). The bereavement experience following home-based family caregiving for persons with advanced cancer. Clinical Nursing Research, 12(2), 127–144. https://doi.org/10.1177/1054773803012002002
Lang, A. J., & Stein, M. B. (2005). PTSD Checklist—Civilian Version (Short Form) [Database record]. APA PsycTests. https://doi.org/10.1037/t08024-000
Mayo Clinic Staff. (2022). Dementia. Mayo Clinic. https://www.mayoclinic.org/diseases-conditions/dementia/symptoms-causes/syc-20352013
National Institute of Mental Health. (2022). Post-traumatic stress disorder. National Institute of Health. https://www.nimh.nih.gov/health/topics/post-traumatic-stress-disorder-ptsd
Ntatamala, I., & Adams, S. (2022). The correlates of post-traumatic stress disorder in ambulance personnel and barriers faced in accessing care for work-related stress. International Journal of Environmental Research and Public Health, 19(4), 2046. https://doi.org/10.3390/ijerph19042046
Poareo, J. (2020). Can Caregiving Cause PTSD? Forbes. https://www.forbes.com/sites/nextavenue/2020/08/21/can-caregiving-cause-ptsd/?sh=20b692027419
Wilkins, K. C., Lang, A. J., & Norman, S. B. (2011). Synthesis of the psychometric properties of the PTSD checklist (PCL) military, civilian, and specific versions. Depression and Anxiety, 28(7), 596–606. https://doi.org/10.1002/da.20837
Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist, 26(3), 260–266. https://doi.org/10.1093/geront/26.3.260
Downloads
Published
Issue
Section
How to Cite
Funding data
-
National Institute of General Medical Sciences
Grant numbers P20GM103474
License
Copyright (c) 2022 Genna M Mashinchi, Emily C. Hicks, Hannes Heppner
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
Author(s) retains full copyright of their article and grants non-exclusive publishing right to Advanced Journal of Social Science and its publisher AIJR Publisher. Author(s) can archive pre-print, post-print, and published version/PDF to any open access, institutional repository, social media, or personal website provided that Published source must be acknowledged with citation and link to publisher version.
Click here for more information on Copyright policy
Click here for more information on Licensing policy